Finnish Cancer Registry

The partner providing scientific expertise shall be the Finnish Cancer Registry (FCR). The legal entity for the FCR is Suomen Syöpäyhdistys ry – the Cancer Society of Finland, which is a major player in the area of cancer research funding in Finland. It is a non-governmental, non-profit organisation on cancer control and care and other relevant public-health and patient-oriented aspects on cancer. The Cancer Society of Finland is technically maintaining the Finnish Cancer Registry, which is one of the legally defined national health care registers. The cancer registry database itself is part of the official national health care registers and is owned by the Finnish Institute of Health and Welfare (THL), and the Cancer Society maintains the FCR based on the contractual agreements with the THL. The cancer registration consists, in addition to the general registration of cancer cases and related statistical and epidemiological research on cancer, also on the registration of the national organised cancer screening programmes. The Mass Screening Registry, being a unit within the Finnish Cancer Registry, is in charge of the registration and evaluation of the cancer screening programmes. It also conceives and develops ideas on organising research proposals and quality development over the field, both on the national and international level.